Posted by Mike B (65.35.86.125) on July 16, 2001 at 00:02:34:
In Reply to: just diagnosed, help posted by Todd on July 15, 2001 at 20:04:05:
Hi Todd,
I am glad that youfinally got the right diagnosis. That's got to be frustrating as hell. I was lucky, I reckon, in that I was diagnosed 1st time I went to the ER ten years ago. I also suffer from episodic CH's.
Forgot to read the previous response to your post, before I started writing here, so I don't even know if they heped you already. I cannot tell you about hte side-effects of the meds you listed because I have not ever taken any of them
However, I have read a few posts that talked about them. Also, Check out the information on the buttons on the left side of the page. In particular, 'Medications'.
Van & Johhny posted a link to a very informative page about Verapamil not too long ago that was veruy helpful. People have said that Prednisone really helps but thatyou should not take it for an extende period. Lithium I cannot recall. But I am sure that someone else will come along with a few extra minutes and will fix you up.
So, anywa, I did the best I could.
I am sorry that you have CH's. At least now you can get some help instead of some friggin doctor giving you some kind of sinus stuff alone that does nothing.giving you Make sure to come back to this site if you need somebody. Everyone helped me out rtemendously when I first found it. (A couple weeks ago? Lack of sleep and CH. duh. Cannot remember)
Hang in there Todd!
Love, Michael B