Posted by Bubba Smith (216.104.228.150) on June 26, 2001 at 16:13:56:
In Reply to: When your a tourist, it's considered rude to blast the locals... posted by ChuckC on June 26, 2001 at 09:41:24:
How enlightend is it if 'fifty zillion' people make comments on the inadequate privacy protection on this website, and the standard response is to ridicule them?
Most people that work in healthcare consider it unethical for a medical website not to have a privacy policy that atleast notifies visitors what information is being gathered and what is being done with it. On the level of a community website, it is pretty easy to set things up so that the individual is in charge of how little or much of their own information they reveal.
And you are in a bubble if you think that there are so many people with CH that safety in numbers is real ... Only a few people per thousand have been diagnosed with CH, which might be why most doctors know so little about it, or why so little research has been conducted on it. Given the fact that most victims of medical discrimination will never know what hit them, there is little fear of groups as large and powerful as the Cluster Heads.