Posted by stevevr (65.113.10.130) on June 06, 2001 at 21:20:01:
If you have a child that has been diagnosed with ch. 16 and under. OR if you have a child who was suspected of having clusters but something else ended up being the diagnosis please email me or respond to the board. The liaison committee is in it's final month of gathering information for the resource page. We are looking for input on the following questions.
1. What made you first suspect clusterheadaches?
2. Who diagnosed your child? Did you end up with a pediatric specialist? Headache clinic? GP? Neuro?
3. Once diagnosed - did you find a way to manage their cycle? If so, how? If not, how do you help your child cope with the pain?
4. If you could summarize your best advice to a parent who is looking for answers regarding their child's head pain - what would that advice be?
This is one post that we hope nobody can relate to but, if you can relate - and if you can give us any insight please leave a response or email me directly. Respond to one or all of the questions.
tireguy@kdsi.net
stevevr