Help please, I dont know what to do anymore

Posted by bobbagels (141.155.18.90) on May 21, 2001 at 23:15:05:

Hello to everyone here,
I am not a cluster headache sufferer,but my 22 year old daughter is.I am assuming most at this board are cluster sufferers as well.Therefore I am in the right place I would guess.
Anyway, she has been to all kinds of doctors,Nurologists,testing,MRI,MRA,Cat Scans and much more. She has a good job,nice boyfriend,decent apartment.She lives on her own and could have a nice future ahead of her.But these dmn cluster headaches are ruining her.
She has had them for a few years now and the testing,many different drugs and techniques have been ongoing with no results.Its getting worse and I just dont know how to help her.I feel so God Damed Helpless.I feel like the doctors just dont know what to do,like they just keep loading her up with drugs and send her on her way.
How can I help her more? What should I do?
I would trade places with her if I could,really.When I see her like that I wanna either explode or cry.
I guess I am just venting here and I'm at the point where I'm grasping at straws.I just dont know what to do.

Follow Ups:

• i dont know micky 00:43:29 06/29/01 (0)
• Dad,, nancyc 11:35:35 05/22/01 (1)
  • Reply and info to all on this BOBbagels 20:02:17 05/22/01 (0)
• It's tough being a supporter Margi 11:27:30 05/22/01 (0)
• dont know what to do anymore. Yoke 09:47:30 05/22/01 (0)
• Soooo proud of you guys. You did the best at what we can do best. Donna 08:35:28 05/22/01 (0)
• You've come to a very good place Bob. Dani 07:19:07 05/22/01 (0)
• Bob, you are... Riccardo 01:52:09 05/22/01 (0)
• I hope you read your email. No doubt you'll have plenty of Charlie S 01:42:44 05/22/01 (0)
• Welcome to you and your daughter to the family Jackie L. 01:12:09 05/22/01 (1)
  • Just thinking the same thing Ted 02:39:10 05/22/01 (0)
• Clusters are so rare Dad Dennis O'C 00:52:40 05/22/01 (0)
• YOU DO BELONG HERE Jeff 00:17:53 05/22/01 (0)
• Can you fill us in more Ted 23:31:25 05/21/01 (10)
  • More info bobbagels 23:40:32 05/21/01 (9)
    • Do that Ted 23:51:33 05/21/01 (8)
      • RE: Ill get all that info tommorrow bobbagels 00:14:38 05/22/01 (7)
        • We will be here waiting on you.... nancyc 00:54:00 05/22/01 (0)
        • We'll be looking for it Ted 00:22:30 05/22/01 (0)
        • We'll be looking for it Ted 00:20:18 05/22/01 (4)
          • Hey Dennis, how'd you make your entry show Ted's message?..nt BobG 01:26:12 05/22/01 (3)
            • No joke..that was too cool..I thought I was seeing things... nancyc 09:46:01 05/22/01 (0)
            • His message covered up one the finest creative messages this board has never seen. Dennis O'C 01:44:12 05/22/01 (1)
              • YER WRITE!!nt BobG 02:02:42 05/22/01 (0)

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