Posted by DJ on March 26, 1999 at 17:12:51:
I want to encourage everyone not to forget about sending messages to the media. I've added new links for the Today Show and Good Morning America on the Media Information Page
I know that the effort that we put forth to try and get 48 Hours to mention something about us went un-noticed by them (as far as we can tell), but there still is hope. Some of the other network prime time and morning shows have got to stand up and take notice of us someday! The morning shows like Today and Good Morning America should be able to say something about us you'd think!
Either way, they'll never know that we are here unless we let them know! I watched a show on the NBC show Dateline this last week and they did a story on a disease that only affects less than 100 people per year! If they can do a story on that few of an amount of people, SURELY they would hear what we have to say!
C'mon ya'll, don't give up! The copies of messages that some of you forwarded to me telling 48 Hours about your life with clusters was absolutely brilliant! Send those same messages to the other programs!
Someone's gonna hear us damnit! But it's going to take an effort on all of our parts!
:-)