Posted by Linda B on March 25, 1999 at 19:33:03:
I would like to take a second of everyone`s time and talk about the convention. This was brought up just before the 48Hour`s thing and seemed to have gotten thrown on the back burner. I still think this is a GREAT idea. I also think we should seriously conceder doing something about it. I have notice with other HA`s disorder`s people do bond in a group. They have medical backing which seem`s to throw them in to the press`s camera`s. Ok we all agree this is something we need. So I say let`s really do something about it. Let`s fight back. Let`s get our name`s and disorder [That would be CH in our case.] out there so everyone can hear. This way maybe us CHer`s will finally get some help. Let me know what you all think. I think it was Greg or Rich that had drawn up a map where we all live to give us kind of a ruff draft to start. By the way who ever did do the map thingy I need another one. Some how it got deleted.
Ok you guy`s it`s all up to us.
Hope we find Pain Free day`s ahead
Hug`s to all Linda B