Posted by Asa (130.238.5.2) on July 26, 2000 at 17:14:37:
(Apparently a problem developed with my previous posting, here goes...)
Hi, I recently sent the OUCH pressrelease to the Swedish national organisation for migraine-sufferers, informing them about the up and coming CH awareness week. In my country awareness is almost nonexistent, even on the organisations homepage the info is extremely limited, mainly stating that CH (or Horton's headache as it is called) is an affliction mainly found with men. This is true, but there is quite a number of women afflicted too, as we all know. There is given no real way to determine whether one is suffering from CH or ordinary migraine. They mailed back and thanked me for the release, but we have to wait and see if any real improvement takes place. Since I was misdiagnosed with migraine for years I feel very strongly about this. I was wondering if there is any more specific info I could bombard them with, I have printed the brochure already. Or if you have any inspired ideas, apart from not getting off their backs. Good luck in Las Vegas (isn't that a megatrigger extraordinaire..?), all of us who cannot attend will be thinking of you. May this be the start of something great, you are all doing amazing work.
LOL Asa