Posted by Nancy (198.247.6.175) on February 06, 2000 at 11:56:56:
In Reply to: I appreciate the words... posted by Francois on February 06, 2000 at 03:40:25:
I need you Francois to talk to me about your clusters and secondary symptoms since I've seen no one else on the board that has had this happen to them. I'm very interested in hearing from you and so is my doctor.
I've been where you are now but somehow made it and so can you.
The secondary symptoms started the last two cycles and I too can go for hrs, I wonder if one doesn't feed the other.
The last two cycles have been my longest with 1 year and a 6 mos one.
The last cycle was the first in 17 yrs that I tried 02, which did stop a good % of the attacks. But when the secondary symptoms kick in it makes it very very uncomfortable to keep the 02 mask on.
I have not seen anyone else talk about a second condition and I've been with the board from the beginning. I've been looking for someone to understand...I thought I was nuts or a real freek...I've been looking and waiting for you for yrs so please click on the blue and talk with me.
Maybe we can help each other.
I've also found that steroid injections have helped me some but has taken a toll on my body. But rather that than the pain.
Yours in the faith that there is hope,
Nancy