Posted by Tom (129.141.38.22) on October 17, 1999 at 17:29:23:
Hi again, I haven't visited or needed to visit the board for a long time (8 months according to the archives). I'm not sure why I stopped in tonight, hopefully it's not a premonition. I was sorry to see this site is still necessary and that there are now so many new participants. Apparently there was no miracle cure found while I wasn't looking. I'm glad you're all still here for one another. The folks here really helped me through my last set of clusters when I found you guys. Even after I decided I was too mean and depressed to post, I still benefited from watching the board. Good to see that's still happening. Didn't realize spelling would become so important though. :^)
I've had CH since I was a teen, I'm 34 now. I've gone through at least one 4-8 week cycle every year since. I was diagnosed with CH almost right away and have been very lucky in being able to find doctors who had at least heard of Clusters and were willing to learn/try new things all these years. I wish everyone the same fortune in their futures. Now I just wish I/we could find someone with a fix for our ills.
Take Care,
PFDANs
tom