Posted by sam (216.199.5.119) on October 17, 1999 at 10:51:35:
Hey, Just cruzing thru and saw the post. I could have used every word in it! Don't think you should edit too much,
maybe... put in an outline form
or something to make eaiser reading.
We do tend to skip over alot when in para form.
Also, we probably don't want to read more stuff on the internet (there is plenty of that)
But want to talk, so they might skip the whole side stuff.
Maybe put it at the top of Message Board; one sentance; " If not diagnosed with Clusters, please come aboard and tell us your symtoms... we can help"
(Margi?)
Personally, I have a bad taste in my mouth with NewCommers, Newbabies or what ever ,,, how about .....
First Time Visitors???
One more thought.....
As Todd saw, there is alot of miss-information around on clusters. When you have headaches and are that bad that you go to the internet for help ... sometimes you just want a name or label to put on them instead of headaches. It gives some closure. so of course clusters is a good name.
And all the meds you are on, we are on , so you tend to feel comfy here.
And as for the pain, as I said pain is pain. My tolerance is very low (Ask a woman who had 4 kids). I would call the eppy doc first to wake him up!! But any ways .........
it takes time reading the board to realize that your pain is much worse than regular headaches. so be nice. which I thinks you guys will, I hope I helped with a none cluster, newbe perspective.
Just think ..... you can allway get a headache everytime a hurricane cruzes past!!! ha ha
so...how do you use this hot-mail stuf and PFD, KTSSU,
but
peace