Posted by A Dame (152.163.213.77) on August 06, 1999 at 23:26:11:
In Reply to: Well said posted by Todd on August 06, 1999 at 20:56:12:
I have only been visiting this website for going on 3 weeks now. I stumbled in when I was in so
much pain, and I got lucky. When I found this website, you would have thought I HAD WON the Georgia Lottery. Just to actually communicate with another HUMAN BEING suffering from this gosh awful pain was wonderful.
I have never been treated like I was an outsider. I know I posted a lot of dumb stuff. They didn't slap my hands and tell me to go look it up in the archives (thanks Mom) or tell me to shut up, although I guess there were many that wish I would and still do. I posted a lot. What else could I do. I couldn't work. I couldn't sleep or eat, I couldn't go out in this heat. I didn't want to be around anyone else. I was tired to the bone of fighting with doctors that didn't understand. TV is useless.
I felt loved the very first time I posted here. I had many people praying for me that I didn't even know. I had perfect strangers that I was pouring my heart and soul out to, revealing my deep dark secret about suffering from CH. I still kept coming back. Everyone has drawn me in with understanding, love, compassion, sympathy, etc. It took my mind off the pain for many, many hours. I don't know what I would have done during this past 12 -13 days if it hadn't been for these wonderful people.
I have never seen so many people from so many different walks of life that have come together just to try and help relieve the pain of others expecting no reward for their efforts. Just knowing someone was there was worth a million. Maybe not relieve the severe pain we all suffer from in our heads, but in our hearts and soul.
They gave me hope, understanding and courage to try something else if one medication after another failed.
The wonderful feeling of "I don't have to suffer another attack alone. Even though I am in North Georgia and my support may be coming from Riccardo in Italy or Margi in Canada, I feel their arms wrapped around me just as if they were right here in my office in my own home.
So, I don't know who you are Ted3, but just maybe you haven't posted to help someone on this site endure some of their pain. Take it from me, I get a lot out of helping one of these guys when they are in pain, because I have been there and felt what they are feeling --- the pain, frustration, dejection, humiliation at the hands of some idiot in an ER room, embarasement (when loved ones see you crying, throwing your guts out in the dart because you can't even stand a night light to be on, walking, rocking, hitting your head, screaming, scared to death your head might explode with the very next beat of your heart, wishing you would die before that next beat....
I just left a wonderful lady (Claudette) that drove by herself all the way from Missouri just to check on me and to meet me, because for 12 days I was in so much pain, I didn't know what I was going to do to finally be rid of this demon. She called me on the phone (her dime long distance) just to check on me because I was silent off the board for a few hours. I have another courageous lady (Elaine) that has cancer and just got off a 3,000 mile trip visiting other CH sufferers (because she wanted to meet them before she dies) that very lady hadn't been back from her 3,000 mile journey but 2 days and didn't know me from Adam's House Cat, called me at 10:30 that night just to check on me and to tell me she was driving up from Atlanta to see me. Me, the new kid on the block. I didn't pay anything to join this club or a better word for me is "Family", because that is what I consider each and everyone that responded to my pleds for help. The only thing I paid to be a part of this family is suffering for over 20 years alone in silence, hiding it for fear of embarasement.
So Ted3, I know of no Click here. Just people that care --- truly care. Maybe you should try to help someone else instead of complaining about not being in a Click.....You might be surprised of how good it feels deep down to give some encouragement to someone else instead of trying to find fault with this website.
Didn't mean to preach, but since I am here, I know there are some that don't believe in God, but that didn't stop me from posting how good it made me feel just to be able to go to Sunday School and Church last Sunday. Instead I got encouragement to try and go. Well wishers if you will. I know some of these family members don't want to hear me or others talk about praying and how wonderful God's Grace is, but they didn't curse me out and tell me to stop all that. I don't agree with everything that is posted, like Drummer's F words, but I don't fuss at him for that, it's a free message board. People need to vent and express themselves in the way that is best for them. There are no true rules here that I know of, just good manners help.
Ted3 I am a Cancer and her home is the most important thing to a Cancer and she is willing to fight for her family and it really makes me mad when someone attacks my Family Members, and that is what you have done in my eyes. Just call me a mean ole Mother Hen, but I don't take pot shots at my family! Treat others as you would want them to treat you, it will come back to you a 1,000 times more.
I'm sure I have over-stepped my bounds here, and I'm sorry, but let's play nice. 'K
A Dame
A Dame
A DAME