Posted by Todd (139.62.224.5) on August 06, 1999 at 13:19:33:
Since we have so many new people who sometimes have trouble with some of our self-generated buzzwords and shorthand, here's a little description. Feel free to disagree, my last name ain't Webster!
Cluster Headattack-a much more accurate and less biased term for the affliction we suffer.
Clusterheads-those of us who belong to this ‘club’ and suffer from Cluster Headattacks.
Convention-see the link. August, 2000 in Las Vegas. Elaine’s heading this one up and would welcome any assistance anyone is able to provide.
Dancing with the demon, doing the dance, etc.-having a cluster headattack.
Demon or Beast-two of several names many of us use to describe a cluster headattack. Demon is the more popular.
Idiot-a completely inaccurate term drummer applies primarily to himself.
Imitrex trick-a method DJ came up with to take less than a full dose of injectible Imitrex. (see the links in the green frame to the left of the window)
Kip Scale-a means of rating the intensity of a CH, developed by Bob Kipple immediately after an early morning visit from the Demon. Now in public domain and also available here through a link in the green.
KTSSU-Keep the Shiny Side Up - the way todd usually closes his posts. Has nothing to do with his other medical condition (follically challenged), but is rather an auto racing/biker/trucker expression that refers to the fact the the underside of a vehicle is NOT shiny and it's usually much better to keep the shiny side UP.
OUCH-Organization for Understanding Cluster Headattacks (Headaches)-A non-profit organization that is being founded by folks right here to publicize CH and increase awareness and education of our needs and issues. Barb d. (Mom) is the point person for this, with tons of other folks helping out.
Shadows-somewhat unique to each of us, but generally any low grade sensation which precedes or follows a full-blown cluster.
Supporters-those wonderful people who live with, love and support Clusterheads.
Water, water, water-a non-drug technique of treating CH that works for some. see margi for details.