Posted by Carl D (208.4.16.158) on July 20, 1999 at 09:47:40:
I've been up for 3 days straight now (not even 10 minutes of sleep) my top half of my body feels like lead. Have been faithfully taking Verapamil (240mg 3xday) and Indocin (??). I am running a fever of 101.4 and I feel like death warmed over. Have lost count of clusters due to lack of sleep, and the Last couple, especially the one @ 6:30 this morning, have been the absolute worst I've ever had. I puked with the last one and passed out. Oh yeah, I got my 2nd rejection on my disability the other day. Hmmm, can you imagine that? Now I have to hire a lawyer. I don't even feel like thinking about it right now. Thanks to Phil C, I was able to get my Verapamil refilled, otherwise I would have been seriously screwed. Also got the indocin, which doesn't do much for the CH's themselves, but helps somewhat with the heavy shadows (which I have termed "Angry Shadows") that I have had pretty regularly for 6 days straight. Had to choose between getting the Stadol spray or getting the Verapamil. Would love, if not just a few days of relief from the pain, but without the Verapamil I go haywire with CH's. I'm wondering if maybe going through long periods of sleep constantly is wearing on my ticker, as I have been getting alot of chest pains lately. A friend said it might be anxiety attacks. Feels like someone is trying to pull a chest muscle through my back. My sinuses are screwed up too - possibly the reason my last two have been double sided (a rarity). Does anyone else ever get them on both sides? It must be experienced to be appreciated. Had to cancel my "emergency appt." with the CH specialist, as I could not afford the visit the day of the appt. so they rescheduled for Sept. 15th. Can you believe it? 2 more months to wait. It's 8:42am and I think I'm starting back up on one again. The last time I went to the emergency room at St Elizabeth Medevial Center I sat in the waiting room for 4 hours.Screw that. This sucks. This sucks!!!!!!!!!!!!!!! THIS SUCKS!!!!!!!!!!!!!!!!
Gotta go. Time for freaking out again. Ready to dream forever... CD